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2010's Recipient - Geoff and Michelle Plumridge Family
“Life is Beautiful” is
one of our all time favorite movies from director Roberto Benigni. It is an
unforgettable fable that proves love, family and determination conquer all. I
think the reason we love the movie so much is because it ironically reminds us
of our own lives. We are the Plumridges - Geoff, Michelle, Samantha and
Michael.
On October 15, 1995 we were making final plans for our wedding
which was scheduled for November 4th. After driving home 500 miles from
Minnesota, Geoff (then 24 years old) complained of the worst headache he ever
had and subsequently loss of consciousness. He was taken by ambulance to the
hospital and a CT scan, followed by an angiogram provided grim news that Geoff
had suffered a ruptured brain aneurysm, survival of this injury is rare and full
recovery unlikely. At the time, statistics suggested that of 100 victims, 50
would die before reaching the hospital, 25 would die before or during surgery,
12 would die following surgery and 6 would suffer permanent disability. So in
other words, odds were not in his favor. He had an operation on October 17th in
an all day surgery. A craniotomy was performed and a portion of the scull was
removed. His brain was literally moved to provide access to the ruptured
aneurysm and two “clothespin” like clips were applied to the artery. Following
surgery he was in the ICU. While there, his intracranial pressure jumped due to
brain swelling. He was given final rites of the Church and we began to try to
deal with the likelihood of preparing for a funeral instead of a wedding.
It was determined that due to the surgery, Geoff now had
epilepsy. Anti-seizure medications were initiated and he began to wake up and
his brain swelling diminished. He had months of rehabilitation, learning
simple things like walking and counting change. You can only imagine how
difficult this change was for a vibrant 24 year old. Over the years Geoff has
had episodes of “auras” or “simple partial seizures” despite being on
oppressively expensive anti-seizure regimen. In 2008 Geoff underwent a cerebral
angiogram which unfortunately showed he had 2 additional aneurysms in his
brain. The location of the aneurysms was labeled as “fascinating” by the
neurointerventionist at Froedtert because he had never seen one in this
particular location. While they are not an immediate risk due to their size,
they must be monitored regularly to track any changes.
Samantha will be 7 this year and Michael will be 6. While I was
pregnant with Michael, my water broke at 21 weeks. I was hospitalized for 3
months and Michael was born a month early. He had serious breathing issues,
including a collapsed lung that occurred during resuscitation efforts. He spent
60 days in the Children’s Hospital NICU learning how to breathe and eat on his
own. He still has breathing difficulties when the weather is extremely hot or
cold, or when the air quality is poor and he has learned that his playtime is
sometimes compromised because of this. He still loves playing with his Hot
Wheels (and fighting) with his sister like any normal 6 year old boy.
In June 2008, our little Samantha was diagnosed with Type 1
diabetes. She is a trooper taking 4 to 5 insulin shots a day and receiving four
finger pricks per day to check her sugar. It turned out to be a blessing of
sorts that Geoff also has Type 1 diabetes (he was diagnosed at age 2). This way,
Samantha was used to seeing Daddy take shots and check his blood sugars. It
will be a purely magical day when they discover a cure for Type 1 diabetes.
Most people think, “Oh well, they can just take insulin to control blood sugars”
– but it’s so much more than that. Diabetes is the seventh leading cause of
death, the number one cause of blindness in adults ages 20 to 74, the primary
cause of kidney failure and is responsible for 60% of non-traumatic amputations.
It creates a need for a whole way of living, including monitoring foods and
exercise. Samantha will be starting 2nd grade this fall and she is so good when
it comes to eating “snacks” that her fellow classmates bring in for their
birthday treats. Sometimes she amazes us with her maturity level, deciding to
only eat half of the 3 inch thick sugar coated cookie with sprinkles instead of
the eating entire thing, or even better, having her teacher check her blood
sugar before biting into it.
In addition to these extraordinary challenges, we’ve had many ups
and downs just like any other family. We have an incredible support system with
loving family and friends and our faith in God. We don’t know what’s in our
future but we do know that medical bills including co-pays for diabetic
maintenance drugs and Geoff’s regular CT scans will continue to mount. We
cannot do this alone and would appreciate your help. One day, they WILL find a
cure for Type 1 diabetes and Samantha will be able to eat that entire cookie
without worry; wouldn’t it be great to say that you were part of this cure? Our
family is very thankful for your time in reading our story and any donation,
great or small is greatly appreciated!
Please remember that “Life is Beautiful!”
2009's Recipient - Kara Rosel Nothem
This is me; Kara Rosel Nothem. I look like a pretty
normal sixteen-year-old with pretty normal worries and problems.
I don’t like showing my teeth in pictures. That was a brand new Hollister
shirt that I bought that day, and my hair looked amazing so I decided
to take a quick self portrait. You know the normal teen priorities,
but what makes me stand out just a little bit more than the rest
of the crazy teenagers in my life is what you can’t see in this picture,
what I consider to be normal, my right leg.
To most, my right leg looks like it’s in a cast, but
to those who know me, they know better. I was born with a birth defect
known as Klippel Trenaunay Syndrome, also known as KTS. There aren’t
many KT cases, but each one is very unique. My type of KT involves
vascular malformations, which are abnormal clusters of blood vessels
in my veins, which is also why I have a lot of veins that make my
right leg look bigger than my left one. My KT syndrome also involves
hemangeomas, which are an abnormal, benign growth of the skin that
can cause abnormal growth of blood vessels as well. I have a port
wine stain, which is just a fancy name for a birth mark but with
weaker skin. My leg is enlarged, and skin lesions are not uncommon
to me.
The cause of this birth defect is unknown, and
there is no cure. But as more and more symptoms come up, more and
more treatments are being found. I’ve had growth plates removed
from my right foot, and my toes have been removed. I’ve been admitted
to Children’s Hospital over a hundred times due to Cellulites,
surgeries, and laser therapy, and I’m positive there will be many
more times to come. Like I said before, I do stand out more than
any other teenager, but as I also said, this is normal to me. This
is my life. Yes, I do have pain and problems every day of my life,
but this is who I am. To me, those obstacles are just hurdles,
and all I have to do is jump right over them. Many people stare
and point and make fun of me, but I think that reflects more on
them than on me. I’ve had people stop being friends with me because
they were embarrassed. I’ve seen people follow me around the mall
when I’m shopping, and I also get the random person coming up to
me and shooting me all sorts of questions. But to be quite honest,
even though it does hurt me at the time, what doesn’t kill me only
makes me stronger. I still live my life the way I want to, without
letting those low points ruin the person that I am.
I am a sixteen-year-old junior at West Bend
East High School. I’ve student- directed two plays and am working
on my third. I was voted Most Likely to Walk the Red Carpet for
my school’s yearbook, and I absolutely love all my teachers. My
friends and I watch tons and tons of movies on DVD and in theaters.
Entertainment Weekly is my favorite magazine. I plan on going to
college majoring in film, and I love folk parody bands. Going to
the cabin with my family is without a doubt my favorite part of
summer. From driving the boat to tubing with my brothers, I love
every part of it.
So, as you can see, I’m just an every day kind
of girl, and I wouldn’t be the person that I am today without those
people that give me a hard time. But mostly, I wouldn’t have made
it this far without my friends, who I can always count on for a
great get-away, and my family. My mom tells it like it is and keeps
me strong. My dad gives me hope and guidance. Thane has the best
shoulder to cry on, and Tyler always has laughter ready waiting
for me. Without my family giving me their love and support, I wouldn’t
be the optimistic, hopeful person I am today. Without them, I would
be the stereotypical pout sitting in the gutter crying over myself,
but no; I refuse to be that kind of person. That gets me nowhere,
but because of my family’s support, I’m actually getting somewhere.
I don’t know what the future holds for me and my Klippel Trenaunay
Syndrome, but I do know that switching my right leg for a fancy,
new one is most definitely a possibility, but the thing is with very
limited insurance coverage for the prosthetic, my family’s future
medical responsibility could be tens or hundreds of thousands of
dollars, and that’s why you just being here means so much to me.
It’s hard for me to admit, but I cannot do this alone. This is the
one hurdle that’s just a little too high for me. Any contribution
would mean the world to me. Like I said before, you just standing
here holding this letter in your hands or listening to this letter
being read to you means that you care, that you are willing to give
your love and support, and for that I will always be thankful.
- Kara
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2009's Recipient - Ryan Prom
My
name is Ryan Prom. I am 11 years old now. On June 8th, 2007 when I was 9 my Mom
and Dad and Children’s Hospital saved my life.
I got diabetes and did not know it. At first we thought it was the
flu, but I kept getting sicker by the hour. Then my mom took me to
the emergency room in West Bend, WI. When I was there, Childerns Hospital flew some doctors and nurses in the flight for life helicoptor to the hospital where I was at to help take care of me. After a while they sent me
to Children’s Hospital. I was there for 3 days and they helped make
me better.
I am now a “Type 1” diabetic. It is tough at times but I am OK. I
play football, basketball, and baseball. I am just like my teammates
it’s just that I have to test before, during and after my games and
practice.
To help: My Mom and Dad are having a barn dance on October 10th,
to raise money for Diabetes.
To get tickets see below, or you can help by sending a donation or
anything that my Mom and Dad could use at the dance auction. We are
going to have an auction and a raffle that night. All the money is going to be donated to Diabetes research. Thank you so much
and good luck to you this year.
- Ryan Prom
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